6005 Park Avenue, Suite 501 Memphis, TN, 38119 USA
Voice: 901 761 5877 Fax: 901 761 2280
E-mail: sarcoid@sarcoidcenter.com
Web Site: http://www.sarcoidcenter.com

The overall purpose of the Sarcoidosis Center is to provide comprehensive services for sarcoidosis patients. The Center will exist both as a virtual entity on the internet as well as a real establishment here in Memphis. Keeping in mind that a majority of these services are currently being developed and depend on adequate funding, the following areas will be addressed:

• Support Meetings
• Realizing that this modality is appropriate for some but not all individuals, these sessions will be held according to the level of interest
• International exposure and coordination of efforts among support groups around the world. We will help not only exchange information with other groups but coordinate educational services and help others form their own support groups. We should provide a model for others to emulate.
• Disability Advice from legal authorities on how to keep records so that your chances are maximized if and when the need to apply for disability occurs. Also, advice on how to avoid disability.


• Educational Materials
• Newsletter providing educational articles and schedules of events around the world and in Memphis.
• Develop our own educational materials to distribute.


• Telephone Services
• Toll-Free Phone number for questions and to request literature
• Have reserved new toll-free number, will be 866-SARCOID (727 2643)
• Provide fax-on-demand services for automated retrieval of printed materials.


• Educational Meetings
• One day educational meetings with authorities from Memphis and from elsewhere with teaching sessions and workshops allowing questions and answers of the authorities.
• Five day educational meetings with authorities from Memphis and from elsewhere. Will involve teaching sessions in morning, workshops in afternoon and separate sessions to teach internet usage, help determining quality of internet site, hands on experience with computers and the internet, help finding international internet buddies, demonstrations of bronchoscope, mediastinoscope, video assisted thoracoscopic procedures (VATS), talks about individual organ systems involved in sarcoidosis, social events, motivational speakers and more.
• Live Internet discussions among patients and among health care professionals.


• Internet
• Improvements in current web site (www.sarcoidcenter.com) which has had aproximately 300,000 visitors in the last 6 years.
• Interactive services
• Structured chat sessions among patients
• Structured chat sessions between experts in various aspects of sarcoidosis and patients
• Structured online lectures by experts in various aspects of sarcoidosis and other support areas, e.g. disability, insurance matters, etc.
• International sarcoidosis expert locator to help patients find a sarcoidosis specialist and also to help investigators find others interested in similar research projects.
• International sarcoidosis registry to attempt to coordinate lists of sarcoidosis patients from medical centers all over the world.


• Research Support (as funding becomes available).
• Funding for individual investigators applying through a grant program
• Funding for other organizations who sponsor research programs

* Although the web site has been in existence for four years, the Center has just been developed recently and as such many of the services listed above are not yet available. Keep checking the web site for more information about the upcoming developments of the center. (www.sarcoidcenter.com).