THE
WEB WE WEAVE - SARCOIDOSIS ON THE INTERNET
BY
Norman
T. Soskel, MD, FACP, FCCP
Pulmonary
and Critical Care Medicine
Table of Contents
5. SURT (Sarcoidosis of the upper respiratory tract)
9. Gastrointestinal Sarcoidosis
11. Salivary Gland Sarcoidosis
13. Associations with Sarcoidosis
C. Individuals Interested in Sarcoidosis
D. Research Studies about Sarcoidosis
III. General Medical Information
A. Pulmonary and General Medical Sites
The Web We Weave: Sarcoidosis on the
Internet
Purpose
The purpose of this report is to sort through
the large number of web pages and present the more factual and accurate pages.
In this extended listing, annotations provide information about the site so
readers can determine if this is the type of site they would wish to view
personally. Some citations provide references to web pages that physicians can
present to their patients in language understandable by non-physicians. An
alphabetic code describes various features of each site. The key to the code is
presented at the end of the list. If readers have their favorite site and it is
not listed please feel free to contact the author at the e-mail address listed
(sarcoid@sarcoidcenter.com).
Magnitude of the Problem
In order to put the problem in perspective
the following is a list of Internet search engines with the results (in numbers
of pages found) of a search on the word "sarcoidosis." Keep in mind
that many of these are redundant in that the same page may be listed under
different search engines and within a given search engine multiple times under
a different aspect of sarcoidosis (e.g. treatment, pathology, etc.). In
addition, there are relatively few sites devoted solely to sarcoidosis and
non-physicians write most of these. The distinction between entire sites and
portions of sites dealing with sarcoidosis will be made in the annotations. A
tabular analysis of the results is presented here.
Search Engine No. of
Sites Found
Alta Vista 7861
Excite 1746
Yahoo 1028
Infoseek 2265
Look Smart 5200
The process started with a web search. At the
last search 7861 citations were found. Most had low relevance. The initial
search of 1746 references disallowed viewing of entries after the first 1000.
After viewing 1000 citations, 296 unique sites were found of which 265
consisted of sites that did not represent redundant citations of previously
viewed sites. 11 were bad links leading nowhere. The remaining 254 sites have
been catalogued and presented to you in this article.
I.
Academic Institution and Individual Physician Web Pages
National Institutes of Health Booklet on
Sarcoidosis - With illustrations
http://www.nih.gov/health/sarc/index.htm Features: IRLW
Loyola University Radiology Department - Terrance
Demos, MD - best page for information and illustrations.
http://www.meddean.luc.edu/lumen/MedEd/Radio/sarc/sarc1.htm Features: IW
The image of sarcoidosis - hilar nodes, right
paratracheal and aortopulmonary window nodes.
http://www.meddean.luc.edu/lumen/MedEd/Radio/sarc/sarc.htm
Chronic Fatigues, ACE, Sarcoidosis - one
page. Pharmaceutical industry information
http://www.pharminfo.com/pubs/msb/cfsid.html Features: RW
American Lung Association - one page on
sarcoidosis with subheadings.
http://www.lungusa.org/diseases/lungsarcoido.html W
Canadian Organization of Safety and Health
http://www.ccohs.ca/oshanswers/diseases/sarcoido.html#Sarcoidosis Features; W
http://www.thriveonline.com/health/Library/CAD/abstract18024.html Features:
Sarcoidosis
http://anatomy.adam.com/mhc/top/000076.htm Features: WRIE
Vanderbilt One page only. Part of a larger
site about pulmonary disease.
http://www.mc.Vanderbilt.Edu/peds/pidl/pulmon/sarcoid.htm Features: RW
University of Illinois College of Medicine at
http://www.med.uiuc.edu/PathAtlasf/framer2/path3.html Features: IW
http://chorus.rad.mcw.edu/doc/00360.html Features: W
Sarcoidosis Case and Discussion
http://www.mamc.amedd.army.mil/williams/TF/Chest/Unknown22/ANS4.htm Features: IRW
http://www.mamc.amedd.army.mil/williams/TF/Chest/Unknown22/Unkn22c.htm Features: IRW
Progression from Stage I to Stage II
http://www.mamc.amedd.army.mil/williams/TF/Chest/Unknown11/ANS2.htm Features: IRW
http://www.rad.washington.edu/maintf/cases/unk31/text.html Features: IWE
National Jewish Medical and
http://library.nationaljewish.org/MSU/12n2MSU_Sarcoidosis.html Excellent one page by Lee Newman with chest
radiographs and references. Very good information, 1994. Features: IRWC
http://blue.vm.temple.edu/~pathphys/pulmonary/interstitial_lung_disease.html Features: IW
Demographics - US and
http://www.medicine.uiowa.edu/gcrc/diseases/sarcoid.htm Features: W
Radiologic Discussion of Diffuse Lung Disease
- Virtual Hospital - general discussion and specific diseases including
sarcoidosis (see listings below).
http://vh.radiology.uiowa.edu/Providers/Textbooks/DiffuseLung/DiffuseLung.html Features: IW
Radiographic Discussion with multiple
excellent chest films. From Virtual Hospital. U.
http://indy.radiology.uiowa.edu/Providers/TeachingFiles/ITTR/Sarcoidosis/Sarcoidosis.html Features: IWE
Approach to Diffuse Lung Disease
http://vh.radiology.uiowa.edu/Providers/Textbooks/DiffuseLung/Text/ApproachDLD.html Featires: IW
Decreased vs. Increased Attenuation Lesions
in Diffuse Lung Disease
http://vh.radiology.uiowa.edu/Providers/Textbooks/DiffuseLung/Text/DecreasedVsIncreased.htmlFeatures: IW
Uniformed
http://wwwpath.usuf2.usuhs.mil/Surg_Path/s96-13/96-13.html Features:
IRW
Dr. Om Sharma's Home Page -
One page of information about sarcoidosis and
Dr. Sharma's involvement with it.
http://www-hsc.usc.edu/~osharma/ Features: WCE
Med CEU - Sarcoidosis Test for Nurses
http://www.medceu.com/tests/sarcoidosis.htm Features: W
http://www.mcgill.ca/pathology/slide11.htm Features: IW
Arthritis Foundation - Sarcoidosis Fact Sheet
- one page about sarcoidosis for the layperson.
http://www.arthritis.org/answers/sarcoidosis.asp Features: WCE
Illinois Department of Health - one page
summary for the lay person plus addresses of support organizations
http://www.idph.state.il.us/public/hb/hbsarcoi.htm Features: WE
Mayo Clinic - Search on
"sarcoidosis" gives 33 documents
http://www.mayohealth.org/mayo/9611/htm/sarcoido.htm Features: ILW
Sarcoidosis Description - NORD - national
Organization of Rare Disorders
http://www.stepstn.com/cgi-win/nord.exe?proc=GetDocument&rectype=0&recnum=215 Features: LWE
American Autoimmune Related Diseases
Association - one brief page about sarcoidosis.
http://www.aarda.org/page42.html Features: W
Features: IRWCE
http://www.vh.org/Providers/Textbooks/DiffuseLung/Text/Sarcoidosis.html (alternate location of same page).
Interstitial Lung Diseases - booklet for
patients.
http://www.vh.org/Patients/IHB/IntMed/Pulmonary/InterstitialLungDz/TOC.html Features: WE
Interstitial Lung Diseases - sarcoidosis
section of above booklet.
http://www.vh.org/Patients/IHB/IntMed/Pulmonary/InterstitialLungDz/ILD1.html#D Features: WE
Eosinophilic Pneumonia, Chronic, radiographs
of sarcoidosis also
http://www.uni-koeln.de/med-fak/acm_cdrom/uiowa/rad/ittr/text/4chronic.htm Features: IW
Seoul National University Hospital Department
of Radiology (
http://radhome.snu.ac.kr/Education/Quiz/Quiz3/3_ans.htm Features: IW
WRAL TV Interview with Dr. James Donohue-
University of North Carolina - one page, one photo of cutaneous sarcoidosis.
http://www.wral-tv.com:0080/features/healthteam/1996/0508-sarcoidosis/ Features: IW
Medicine Net - single page with a lot of good
information for lay people.
http://www.medicinenet.com/Art.asp?li=MNI&ag=Y&ArticleKey=6077 Features: W
University of Connecticut Health Center
Radiology Department - Synopsis of Sarcoidosis in table.
http://155.37.5.42/TMGEN/07008280.htm Features: RW
Healthanswers provides a brief paragraph but
extensive page with links to information about various related items such as
list of symptoms, tests, specific tests, e.g. gallium scan.
General Description of Sarcoidosis
http://www.healthanswers.com/database/ami/converted/000076.html Features: LW
http://www.med.ualberta.ca/lmp/000p007e.htm Features: IW
Australian Lung Foundation - The Lung Net,
Fact Sheet on Sarcoidosis
http://www.lungnet.org.au/sarcoidosis-health.html Features: W
http://www.rbh.nthames.nhs.uk/res_med/sarc.htm Features: W
Pulmonary Sarcoidosis and Neurosarcoidosis -
optic neuritis - chest x-ray, MRI brain
http://www.rad.bgsm.edu/radmain/htmls/cases/c091696/case.html Features: IWE
UNIVERSITA' DEGLI STUDI DI MILANO FACOLTA' DI
MEDICINA E CHIRURGIA (
Extrapulmonary Manifestations of Sarcoidosis -
Fairly extensive page with table of contents and various sections
http://www.fortunecity.com/skyscraper/cyrix/56/index.htm Features: IRW
University of
Sara DePaul's Pathology Review - one
paragraph in a general discussion of lung diseases.
http://www.med.uiuc.edu/m2/pathology/TAreviews97/ta.review.lung_vasc.htm Features: W
Med Help - very brief definition only
http://www.medhelp.org/glossary/new/gls_3750.htm Features: W
Karolinska Institute. Department of
Neuroscience.
http://www.neuro.ki.se/neuro/KK2/sarc.html Features: WIE
http://xray.anu.edu.au/hospital/patinfor/sarcoid.html Features: W
Links to other sarcoidosis pages (Snap search
results)
http://www.snap.com/directory/category/0,16,-19855,00.html Features: L
Hentry Schmitt's Sarcoidosis Links -
redundant with other pages.
http://www.schmitt.org/henry/sarcoidosis.html Features: LE
Cyclosporin A Was Not Superior to Steroids
Clinical History of Pulmonary Fibrosis Was
Described
Three abstracts on sarcoidosis and one on
pulmonary fibrosis from various journals. Talmadge King editor.
http://www.acponline.org/journals/annals/15nov98/uppulmo.htm Features: WR
Sarcoidosis of the arm (cutaneous) - nice
photo.
http://www.meddean.luc.edu/lumen/MedEd/Medicine/dermatology/melton/sarcoid1.htm Features: IW
Institute for Biomedical Informatics Faculty
of Medicine,
Dermatovenerološke klinike,
http://www.mf.uni-lj.si/~ljupco/derma/eng/td/tube_ch-sarc.html Features: IW
Indiana University Department of Dermatology
- Cutaneous Sarcoidosis - case discussion in form of quiz. Cutaneous
photographs.
http://erl.pathology.iupui.edu/cases/dermcases/case.cfm?case=2 Features: IW
Cutaneous sarcoidosis lesion - one image.
http://tray.dermatology.uiowa.edu/Sarcoid01.htm Features: IW
"Naked granuloma" in skin - one
image.
http://tray.dermatology.uiowa.edu/DPT/Granulom.htm Features: IW
Epithelioid cells from cutaneous granuloma -
one image.
http://tray.dermatology.uiowa.edu/DPT/Eptheloid.htm Features: IW
http://matrix.ucdavis.edu/rxderm-archives/sarcoidosis Features: W
Dermatology Journal - Lofgren's syndrome case
report and discussion in Spanish and English
Excellent radiographs, photomicrographs and
cutaneous photographs.
http://matrix.ucdavis.edu/DOJvol3num1/bruises/bruises-por.html Features: IRW
Barnes Hospital Dermatology Department -
quiz. Cutaneous photograph and photomicrograph. Some discussion.
http://dermatology.wustl.edu/10-96.html Features: RW
Retinal photos and description in Spanish.
http://www.oftalmored.com/coriorretinitis/libro08.htm Features: IRW
http://www.eyenet.org/member/pearls/conjnod.html Features: IW
Review of Optometry Online - photos of
periocular, palpebral, and retinal granulomas
http://www.revoptom.com/handbook/sect7d.htm Features: IW
http://www.meddean.luc.edu/lumen/MedEd/medicine/pulmonar/path/lpath55.htm Features:WI
Sarcoidosis of the Lung -
http://155.37.5.42/eAtlas/RESP/1654.htm Features: IRW
Spontaneous Hemopneumothorax in Sarcoidosis
(Stanford) - case report - abstract
http://www-med.stanford.edu/medworld/worldview/cases/references.html Features: RW
a. Pulmonary
Function in Sarcoidosis
Navy - Aeromedical Reference and Waiver Guide
- one page - aerospace medical concerns regarding sarcoidosis.
http://www.nomi.navy.mil/code04/respnf.htm Features: W
5. SURT (Sarcoidosis of the
Upper Respiratory Tract)
Baylor - otolaryngologic manifestations.
Prepared by resident. One page. Excellent review of history of sarcoidosis and
very brief review of upper airway involvement. Also discusses the possibility
that Beethoven may have had sarcoidosis.
http://www.bcm.tmc.edu/oto/grand/3995.html Features: RW
Inflammatory Myopathy/Neurosarcoid - one page
with links to other related topics Features: W
http://www.neuro.wustl.edu/neuromuscular/antibody/infmyop.htm#sarcoid Features: RLWC
Neurosarcoidosis - Radiological Discussion
with MRI, gallium, radiographs, etc. -
http://www.mtsinai.org/radiology/case1.html Features: IRW
Myocarditis, Sarcoidosis - photomicrograph.
University of
http://www.med.uiuc.edu/PathAtlasF/CVatlas044.html Features: IW
Life Row - a book about surviving a medical
crisis - cardiac sarcoidosis.
http://www.nickel-wantads.com/liferow/chapter1.html Features: E
Cardiac Sarcoidosis - case report with
radiographs. From the
http://www.sma.org.sg/smj/3807/articles/3807ed1.htm Features: IRW
Canadian Journal of Cardiology - Abstract of
Cardiac Sarcoidosis: An unforseen cause of sudden death
http://www.pulsus.com/cardiol/11_02/kava_ed.htm Features: W
http://www.sma.org/smj/97apr15.htm Features: RWC
http://155.37.5.42/eAtlas/HEM/645.htm Features: IRW
http://cpmcnet.columbia.edu/dept/dental/OMS/OMS_salivary001.html Features: W
http://familymedicine.miningco.com/library/weekly/aa112298.htm -Features: WL
Dactylitis - chest radiograph.
http://www.rad.bgsm.edu/radmain/htmls/cases/c010197/case.html Features: IWE
13. Associations with
Sarcoidosis
Sarcoidosis and Testicular Carcinoma - Mayo
Clinic
http://oncolink.upenn.edu/cancernet/98/sept/709155.html#15 Features: W
http://www.pneumotox.com/pneumotox/patterns7e.html#return0 Features: RW
Department of Nuclear Medicine,
Somatostatin receptor imaging in patients
with sarcoidosis.- abstract and citation
http://www.link.springer.de/link/service/journals/00259/bibs/8025009/80251284.htm Features: W
Radiology of Sarcoidosis -
http://radserv.med-rz.uni-sb.de/isapi/query.dll/ecase/1/69 Features: IRWE
University of
http://nuc-med-read.uthscsa.edu/williams/Chest/Images/Sarcoid/cxr1.htm Features: IW
http://www.thoracicrad.org/PostGraduatePapers/BatraP.html Features: RW
15. Other Lab Tests in
Sarcoidosis
Elevated D-Dimer in Patients with Sarcoidosis
Robert L. Hunter
Department of Pathology and Laboratory
Medicine, University of Texas-Houston Medical School.
http://129.106.232.27/labpages/abs.1993#21 Features: W
Dr.'s Guide to the Internet - Sarcoidosis -
may be caused by unknown environmental agent.
http://www.pslgroup.com/dg/246aa.htm - Features: WC
Mycobacteria as a Cause of Sarcoidosis.
Hospital de S. João, (
http://www.medisa.pt/ppm/ppm_24/pneumol.htm Features: RW
Kaposi's Virus found in Sarcoid Tissue -
synopsis of entire article from Skin and Allergy News, 1998.
http://www.medscape.com/IMNG/SkinAllergyNews/1998/v.29.n02/san2902.03.01.html Features:W
Medscape - Sarcoidosis: active treatment not
always required
http://psychiatry.medscape.com/adis/DTP/1997/v10.n07/dtp1007.02/dtp1007.02.html Features: RW
Role of Lung Transplant in Sarcoidosis -
Clinics in Chest Medicine very short abstract.
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=0009413664&form=6&db=m&Dopt=r Features: RW
Lung Transplant Association - all about
transplants
http://www.2ndwind.org/main.htm Features:
1000th heart transplant (heart
lung)(Stanford) - had emphysema and sarcoidosis. Announcement only. 1995.
http://www.service.com/PAW/morgue/news/1995_Jan_6.HEART.html Features: W
Electromagnetic Fields - Millimeter Wave Therapy
of Lungs and Thoracic Lymph Nodes- one paragraph http://www.infoventures.com/emf/currlit/bu11820.html Features: L
B. Factual
Information and Support Groups
http://www.mssm.edu/medicine/pulmonary/sarcoidosis.shtml Features: W
C. Individuals with an
interest in Sarcoidosis - But No Information About the Disease
Baughman - single page of information on him.
University of
http://bioscience.org/editmemb/baughman.htm Features: W
Steven Weinberger, MD - principal
investigator in Beth Israel component of ACCESS study by NHLBI
http://rncc.bih.harvard.edu/faculty/database/sweinberger.html Features: WE
http://150.216.6.18/experts/pulmonary.html Features: W
D. Research Studies on
Sarcoidosis
National Institutes of Health Study on
Uveitis Related to Sarcoidosis - study description. Features: WE
http://www.rucares.org/social/sarcoid.html Features: WE
ACCESS description.
http://www.med.upenn.edu/lungctr/academic_programs/pulmonary/research/trials.html Features: W
E. Sarcoidosis-Vasculitis
and Diffuse Lung Disease
http://www.pinali.unipd.it/sarcoid/index.html (main page) http://www.pinali.unipd.it/sarcoid/jrinsaut.htm (instructions to authors) Features: WE
A.
Factual Information and Support Groups
.http://www.nsrc-global.net/ Features: WRLACE
Joseph McLaurin's Sarcoidosis Website Good
information written by laymen. Lists links to support groups. Same page of
information as NSRC. There is are very good descriptions of prednisone, imuran
and cytoxan and their side effects, uses, etc.
http://pobox.upenn.edu/~jmclauri/ Features: RLACE
Jay's Sarcoidosis Page - one of the clearest
and best overall lay person's page. I have personally communicated with this
person who is caring and conscientious. There are links to other pages with
support. There is also an image map of the
http://www.blueflamingo.net/sarcoid
Features: ILACE
Home page for sarcoidosis sufferers and their
families. Robert Schoenfeld sarcoidosis page. Multiple links some of which no
longer exist but e-mail addresses are available for support. There is also
information about obtaining disability benefits.
http://www.liii.com/~roberts/sarcoidosis.html Features: LAE.
SWSG Sarcoidosis World Wide Support Group - Gregory
Purdon's Directory - A very extensive list of links to support groups,
hospitals, government agencies, universities, and more.
http://www.geocities.com/HotSprings/Spa/9139/ - PURDON
SARCOIDOSIS WEB SITE RESEARCH DIRECTORY
Features: LAE
Sarcoidosis HelpNet - incomplete but some
useful information and links. Associated with Mt. Sinai Support Group.
Walkathon photos 1997.
http://www.dynateck.com/helpnet/Index2.htm Features: LWAIE
Let's Breathe Sarcoidosis Page - Brenda
Harris
http://www.geocities.com/HotSprings/Spa/3513/Features: LAE
Roberta Kallay's page - personal information
plus links to familiar sites.
http://members.aol.com/bertk523/index.html Features: LAE
First Dutch Web Page for the
Sarcoidosis/Boeck's Disease (The Netherlands) Some information about
sarcoidosis plus messages from patients and links.http://www.xs4all.nl/~boeck/indexeng.html - in English. Features: LAE
http://www.xs4all.nl/~boeck/index.html - in Dutch. Features: LAE
Sarcoidnet: The
http://www.geocities.com/HotSprings/Villa/6542/index.html Features: LAC
The National Sarcoidosis Foundation at St.
Michael's
http://www.healthy.net/pan/cso/cioi/TNSFSMMC.HTM Features: W
The
http://www.cheshire-med.com/programs/pulrehab/forum/messages/423.html Features: EA
Sarcoidosis Letter
http://www.pcisys.net/~skug/join.html Features: CE
Swedish Sarcoidosis Support Group - in
Swedish
http://www.geocities.com/HotSprings/6632 Features: LE
Individual With Sarcoidosis Page has
absolutely no information or links
http://www.angelfire.com/al/homeofrjbogonia/ Features: E
C. Other Information (not
factual, not support)
Beethoven may have had sarcoidosis.
http://www.bcm.tmc.edu/oto/grand/3995.html Features: WR
III. General Medicine (not sarcoid)
A.
Pulmonary and General Medical Sites
Compendium of links to chronic lung disease
pages including sarcoidosis.
http://www.cheshire-med.com/programs/pulrehab/rehinfo.html Features: L
HealthAnswers
http://www.healthanswers.com Features: WLE
University of
Links to Other Lung Disease Sites
http://www.upmc.edu/clc/Links.htm Features: WL
http://www.pul.unimaas.nl//index.htm Features: WL
Mesothelioma Web
http://www.mesotheliomaweb.org
Choroid - Uveal Tract Defined
http://www.gansmart.com/medinfo/sf/choroid.htm Features: W
Iritis - Rx Med (family physicians) - one
page of information.
http://www.rxmed.com/illnesses/iritis.html Features: W
Iritis
http://ophthalmology.miningco.com/library/weekly/aa050498.htm Features: W
Anterior Uveitis - photo of uveitis and
description.
http://www.revoptom.com/handbook/sect4e.htm Features: IW
Uveitis
One paragraph.- part of special education web
site.
http://www.spedex.com/resource/documents/veb/uveitis.html Features: W
Philip Ian Murray
http://medweb.bham.ac.uk/http/depts/ophth/NewUveitis.html Features: W
PubWeb - Uveitis
http://www.ohsu.edu/cliniweb/C11/C11.941.879.html Features: LW
Pub Web - Granulomas in General
http://www.ohsu.edu/cliniweb/C23/C23.484.html Features: LW
http://www.path.sunysb.edu/hemepath/tutorial/specif_react/specif_react.htm Features: ILW
Lymphadenopathy: Differential Diagnosis -
University of
http://www.aafp.org/afp/981015ap/ferrer.html Features: W
Waikato Hospital Hamilton New Zealand
Department of Dermatology - Erythema Nodosum. General page but good search
engine with Erythema Nodosum information.
http://www.dermnet.org.nz/.html Features: IW
Erythema Nodosum -
http://www.med.virginia.edu/docs/cmc/cases/enodosum.html Features: IWE
Erythema Nodosum - Department of Pediatrics -
Pedianet - Dr. Al Gandy, MD, Phd, FRCP(c)'s database on pediatrics.
http://www.pedianet.com/news/illness/disease/files/erythem2.htm Features: WER
Bell's Palsy -
http://www.wvhealth.wvu.edu/Neurological/bells.htm Features: W
Bell's Palsy - audio health library
http://www.yourhealth.com/ahl/1062.html Features: WV
Federal University Rio de Janeiro (
Pleural Fluid - discussion for medical
students of workup of pleural effusion. Lists and tables.
http://www.medstudents.com.br/pneumo/pneumo5.htm Features: RW
Angiotensin Converting Enzyme - in Spanish.
One table.
http://www.farestaie.com.ar/docs/analisis/a_f/enzima.html Features: W
Angiotensin Converting Enzyme Level - assay.
Pharmaceutical company page.
http://www.neoforma-ch.com/cat-ch/p0i/p0i7ay5n.html Features:
Chest X-ray - audio health library
http://www.yourhealth.com/ahl/1534.html Features: WV
Universiteit Maastricht (The
http://www.unimaas.nl/~pulmo/sum_mar.htm Features: W
Pulmonary Function Tests - audio health
library
http://www.yourhealth.com/ahl/1546.html Features: WV
Corticosteroids in Lung Disorders
http://www.lungnet.org.au/corticosteroid-health.html Features: W
Prednisone - Mosby, Inc. - good description
of the drug, its effects and side effects.
http://www.rxlist.com/cgi/generic/pred.htm Features: RW
Mayo Clinic - Interstitial Lung Diseases -
whole section on interstitial lung diseases.
http://www.mayo.edu/pulmonary/ild.htm Features: W
Asthma Management - NHLBI - slides,
guidelines. Extensive information for support.
http://nhlbisupport.com/asthma/index.html Features: WI
http://pathhsw5m54.ucsf.edu/case14/radiology14.html Features: IW
http://pathhsw5m54.ucsf.edu/case20/radiology20.html Features: IW
http://pathhsw5m54.ucsf.edu/case19/case19.html Features: IRWE
Facts about Beryllium Disease
http://www.nationaljewish.org/medfacts/beryllium_medfact.html Features: RWC
Beryllium Bibliography.
http://www.dimensional.com/~mhj/be_bibliography.html Features: RLWE
Beryllium Support Group
http://www.dimensional.com/~m hj/index.html Features: LWE
Beryllium Registry (
http://ehpnet1.niehs.nih.gov/docs/1996/Suppl-5/williamsabs.html Features: RW
Pneumotox - Drug Induced Lung Disease -
Department of Pulmonary Diseases and Intensive Care Unit, University Hospital
Dijon - France Psuedosarcoidosis: interferon alpha.
http://www.pneumotox.com/index.html#return0 Features: RW
National
http://www.naotd.org/index.html Features: LE
Disability Services
http://www2.rpa.net/~lrandall/webdoc3.htm Features: LE
Health Information Resources
Author's e-mail addresses soskelnt@sarcoidcenter.com or sarcoid@sarcoidcenter.com.
Author's Web page - http://www.sarcoidcenter.com/.
Rather than provide a rating scale, a more
objective list of features provided by each page is presented according to the
following scheme.
Academic Pages
I - Illustrations about sarcoidosis R -
References (to journals, books, etc). L - Links to other pages. W - Written by
MD, PhD, DO, etc). C - Current (updated < 6 months).
Non-Academic Pages
I - Illustrations about sarcoidosis R -
References (to journals, books, etc). L - Links to other pages. A - Absence of
inflammatory language. C - Current (updated < 6 months).
Makeup of the Unique Sites
|
Academic Sites (from institutions/physicians) |
|
|
Associations |
4 |
|
Bone/Joints |
2 |
|
Cardiac |
4 |
|
Cutaneous |
15 |
|
Endocrine |
1 |
|
Etiology |
4 |
|
Extrapulmonary |
1 |
|
Eye |
7 |
|
Facts and Support |
3 |
|
General Information about Sarcoidosis |
70 |
|
Imaging Techniques |
4 |
|
Lab Tests |
1 |
|
Liver |
1 |
|
Neuro |
8 |
|
Pancreas |
1 |
|
Pulmonary |
5 |
|
Pulmonary Function |
1 |
|
Salivary Glands |
1 |
|
Spleen |
1 |
|
SURT |
2 |
|
Therapy |
8 |
|
Total: 144 Unique Academic |
|
|
Non-Academic Sites (written by laymen) |
|
|
Facts and Support |
14 |
|
Support |
5 |
|
Total: 19 unique non-academic sites |
|
|
Total Academic and Non-Academic Sites |
|
|
Academic Sites |
144 |
|
Nonacademic |
19 |
|
Research Studies |
3 |
|
Pages about individuals interested in sarcoidosis |
7 |
|
Bad Links |
11 |
|
Total unique sites |
184 |
|
Viable citations (minus bad links) About Sarcoidosis |
173 |
|
Additional Non-Sarcoid Sites About Related Topics |
|
|
Signs and Symptoms |
24 |
|
Lab Tests |
19 |
|
Therapeutic Agents |
4 |
|
Related Diseases |
12 |
|
Pulmonary Diseases |
4 |
|
General Medical Pages |
1 |
|
Total unique pages about general aspects common to sarcoidosis but pages are not about sarcoidosis |
64 |
|
Other Classifications |
|
|
Universities and Medical Centers |
72 |
|
Countries |
23 |
|
Other Organizations |
34 |
|
Journals |
13 |
|
Characteristics of Pages |
|
|
Dedicated to Sarcoidosis Alone |
19 |
|
Written by Physicians |
3 |
|
Written by Laymen |
16 |
|
Major Discussion of Sarcoidosis but Part of Larger Page |
231 |
|
Written by Physicians |
218 |
|
Written by Laymen |
13 |
|
By Physicians or Major Academic Organizations |
221 |
|
E-mail Address |
55 |
|
Illustrations |
77 |
|
References |
69 |
|
Links |
41 |
|
Audio Files |
3 |
|
Relative Importance |
|